Whether your child is a newborn or a teen and whether their hearing loss is moderate or profound, it’s certain that you have received an overwhelming amount of advice. And all too often this advice is conflicting. From communication methods to classroom placement and everything in between, everyone has their own opinion of what works best. Unfortunately, this advice is usually based on what worked for them and not your own family dynamics.
No one person can decide what works best for your child and your family. Fortunately, there is a wealth of information to be found online and in libraries. Learning as much as you can from these sources will arm you with the knowledge to make informed choices.
Below are some links we think will be useful. This list is by no means all inclusive. It is merely a starting place.
Setting Language in Motion: Family Supports and Early Intervention for Babies Who are Deaf or Hard of Hearing - A free, web-based resource developed as a collaborative effort between the Laurent Clerc National Deaf Education Center and the Deaf and Hard of Hearing Program of Boston Children's Hospital. It is based on the Building Blocks of Intervention webinar series created by the Deaf and Hard of Hearing Program at Children's.
Raising Deaf Kids - A world of information about children with hearing loss.
Raising and Educating a Deaf Child - International experts answer your questions about the choices, controversies and decisions faced by parents and educators of deaf and hard of hearing children.
Deafness and Hearing Loss – Fact sheet from the National Dissemination Center for Children with Disabilities.
ORGANIZATIONS & AGENCIES
National Center for Hearing Assessment and Management (NCHAM) Serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems. As a multidisciplinary center, our goal is to ensure all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational and medical intervention.
NCHAM also has a resource guide for Early Hearing Detection and Intervention listed at their site.
Kentucky Early Hearing Detection and Intervention Program (EHDI) - Manages the state Newborn Hearing Screening Program, which ensures all newborns receive a hearing screening before leaving the hospital.
Kentucky First Steps - Statewide early intervention system that provides services to children with developmental disabilities from birth to age three and their families.
Kentucky Commission for Children With Special Health Care Needs (KCCSHCN) – Provides care for children with physical disabilities. A child can receive services from KCCSHCN if they reside in Kentucky, are younger than age 21, have a medical condition that usually responds to treatment, is covered by the program and meets financial guidelines. Services are approved as required by the patient’s treatment plan.
Statewide Family Support Center (SFSC) - A resource for every family in Kentucky with a child who is deaf or hard of hearing. This unique center offers services that will help families better meet the needs of their deaf or hard of hearing child or children.
Hands & Voices - Dedicated to supporting families with children who are deaf or hard of hearing without a bias around communication modes or methodology. They are a parent-driven, nonprofit organization providing families with the resources, networks and information they need to improve communication access and educational outcomes for their children.
American Society for Deaf Children - ASDC supports and educates families of deaf and hard of hearing children and advocates high-quality programs and services.
A.G. Bell Association - The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, A.G. Bell helps ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.